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Mark, you have a lot of positive waves being sent your way. Just worry about the here and now. Once you are strong again I'm sure you will be home by the summer.



Barney
 
Get Well Mark

Saw that the swedish bikini team was mentioned in this thread, and dug this out of my bar swag. Get better Mark.
 

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Mark, I had a 9 month old grandson left in a pickup in July for 8 hours. When we found him he was barely alive. he was rushed to the hospital here in Gillette and was not expected to make the ambulance trip. He was not supposed to make the life flight to Denver Childrens Hospital, he was not supposed to make the next 12 hours, or the next 24 hours. His core body temp was 108 degrees and we don't know how long he had been like that.After his first MRI the neurology dept said the best we could hope for was vegetable status. I asked the Dept woulkd he ever be self-awre again, they asked what I meant--- i said will he know who he is, what he is, where he is, and how he is -----they shook their head no. I e-mailed almost everyone I knew to start praying for that child, 3 weeks later he left the hospital and returned tro Gillette. He no longer requires a feeding tube. responds to his name. Smiles when its right to smile, laughs and knows his Grandpa. Mark----you told me once good things happen to good people, you are good people----let the good things happen to you. Through AK a lot of people have come to know you, I doubt a one of them would disagree with me. The world has too few characters left, and you're one of them. Stick around awhile, I'd like to know you better. I have experienced what the mind and prayer can overcome, and I'm praying for you now.
 

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I am praying for you Mark!!
Your last post hit the AK community and me like a ton of bricks----but many people have beat medical odds and I believe you will be one of them. STAY TOUGH!!!
James

+1 on that Mark.

Sorry to hear the news, but know there's a lot of us pulling for you
 
markthefixer said:
march 5 is the only one from you i can find... btw doing PM's is a greater strain than the forums.

OK, just wanted to make sure it didn't get lost in cyberspace. I will bear that in mind about PMs being a strain.

markthefixer said:
on a more general note, re place :

it is because of my combined weight and perceived by staff oxygen needs

my actual weight is murky, but it would have to be below 500 ( entirely possible )

and the oxygen limit 0.42 versus 0.5 ( whatever that is )

hearing that, plus other things said by the social workers that seemed to express their view that I would never live on my own outside of a skilled nursing facility again,

left me with a rock in my guts.

Are they (social workers) talking with you directly about this, or is it stuff you overheard? I mentioned this to my wife, who is in healthcare as a Physical Therapist, and she said if it was the latter it seemed a little unethical, if that's the correct term. Don't be afraid to ask questions of your caregivers, you have the right to know.

Wishing you all the best, as we all are here,

Lee.
 
Mark, nurses and support staff voice their opinions all the time.
I should know, I've been an Operating Room R.N for over 20 years.
I've discussed thousands of outcomes and I've been proved wrong more times than I can remember. Medicine is not an exact science and I've seen patients walk out of the hospital that we initially gave only a few hours to live.
The most important opinion is yours.
 
Your last post hit the AK community and me like a ton of bricks----but many people have beat medical odds and I believe you will be one of them. STAY TOUGH!!!
James

Mark,

You should know that you are in all of our thoughts.

Bob
 
march 5 is the only one from you i can find... btw doing PM's is a greater strain than the forums.

on a more general note, re place :

it is because of my combined weight and perceived by staff oxygen needs

my actual weight is murky, but it would have to be below 500 ( entirely possible )

and the oxygen limit 0.42 versus 0.5 ( whatever that is )


hearing that, plus other things said by the social workers that seemed to express their view that I would never live on my own outside of a skilled nursing facility again,

left me with a rock in my guts.

Sorry to hear that Mark. But doctors and nurses can be wrong. That is why they call it practiced medicine. Prove them wrong and get better.
 
Thought for a day about this, Mark; could not have said it better---


<snip> "We are all pulling for you Mark. Nothing but Prayers and Positive thoughts"

-Lee
 
still in Chicago, 48 hours into a weaning test. after 3 days on spontaneous vent ( it won't pass me air if i don't breathe and will scream like the damned at more than a few missed breaths ) then they draw blood to check my blood gasses....

plus, what were they thinking, moving someone before or on Good Friday with regard to staffing??? There are tumbleweeds blowing through the doorways here :D

Thursday, everyone had "get-home itis"
 
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You have a way with words my friend!! I've been around a "weaning off the vent" , a life was in the balance, ain't much difference there eh?
 
my weight is even MORE indeterminate, One of my MD's totaled up the recorded foley output of all the extra fluid the lasix liberated from me over these two months and opined that 100 pounds loss would not be unreasonable.
 
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special considerations starting with an extreme physiological situation..

plus gazziillions of blood draws for monitoring

first thing i do is shave the back of my hands rather than loosing small patches individually.

edited in september:
also they pump you full of electrolyte pills. And watch the electrolyte levels like a hawk.

edit - it's October and the "tracks" (like a junkie's tracks) on the back of my right hand still haven't faded away.
 
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weaning will change things

i shoo'd back the PT folks this morning and sat up on the edge of the bed myself unassisted

they didn't think i could, blew their minds

but i couldnt wrangle a walker to try to stand, and privately assess my losses

soon....

i very well know there's a long way from standing, to stepping to stair climbing.
 
Mark, I love reading the spirit in your voice. You've got a goal and it's nice to see you moving towards it. If I know you, you'll get there.
 
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