markthefixer Needs Your Support!
- Thread starter Robie
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it handled a sx-d7000 nicely, and that is about the largest i would try to fit into it... bigger gets the white whale....
btw my problem is hypoventilation, both daytime during non-movement intervals, as well as during deep sleep, and IIAC it is NOT a slowing of respiratory rate, but probably excessively shallow breathing. I can easily purposefully hyperventilate on room air and drive my O2 sats to 98 - 99% , thus I do have the lung capacity.
edit: we haven't proven excessively shallow breathing versus missed respirations.... yet....
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laatsch55
Super Member
So does that mean it's an autonomic problem?? And how do they handle that?
On the Spec, had a customer inquire about fixing his and I don't believe he's an expert at packing. If it was something that could be done without messing with your recovery that's fine but if not don't sweat it Bud, keep on healin.
On the Spec, had a customer inquire about fixing his and I don't believe he's an expert at packing. If it was something that could be done without messing with your recovery that's fine but if not don't sweat it Bud, keep on healin.
The response is academic anyway, I am NOT out of the hospital, thus I cannot even ship the case, no less work on something, in line or not.
repair work will not magically start when I finally get home, I will still be recovering for a while.
repair work will not magically start when I finally get home, I will still be recovering for a while.
FreeOrange
Well-Known Member
Good luck in your continued recovery! Take your time and do it right!
laatsch55
Super Member
I know that Mark. I'm going to fix the Spec, just wondering if perhaps the case was in circulation. No biggie.
Well, I am pissed. They are awakening the "bad mark".:nono:
Specifically the "king" of this facility, Dr. Gupta.
He doesn't actually refuse to write my discharge orders, he just stalls and forgets and "misunderstands" a week or more later. I only see him once a week (the legal minimum) on thursday or friday, then the weekend ensues. Change of staff to weekend people, hard to discern changes, or track the LACK of orders for change.
Orders are written by him and control all activities that occur.
I now can and have stood up without using the walker, although it is not yet a regular practice, I can walk the limited distances across my room, tethered by my oxygen line, repeating the trip TEN TIMES, across and back, then sitting down and standing up every time. I have climbed stair equivalents enough to get into my home..
and my gait, while walking, is smooth and normal, not step, stop, move walker, repeat, but rather step step step while rolling the walker.
I was supposed to get portable oxygen to get out in the halls for walking longer distances for excersise... guess what?? no goddamn order YET, after two weeks of requests. I wheedled , under the table as it were, a longer hose that lets me do the distances in the room.
It IS the 60th night I slept here, as a short term patient instead of a long term resident, 90 is the limit IIAC...
Tomorrow was the day I was shooting for to GO HOME. Guess where the HELL I am now? Didn't want to jinx anything??? it was a doomed effort...
There was talk about sending me home on oxygen, thus needint travel oxygen tanks and a reserve tank at home. NOW he DOESN'T know or want to say what my daily breathing equipment that he will require me to have ready to discharge me. MORE GODDAMN TESTS. That "hypoventilation" bupkus? another stall? a rare condition...
Yes, there is the option of going "A.M.A." but consulting my regular physician whom is powerless in this situation, he said "You don't want to do that, it will really create problems for you".
I don't know if Dr. Gupta has fallen into the "warehousing of patients" mentality or is the most "cover your ass" esso bee in the universe.
OR is he just trying to stretch out the stay to the maximum $$ he can get?
My physical rehab has gone better because there isn't the micro-control of the physical therapists that there is with the respiratory technicians. Thus I was easily able to exceed previous capabilities and "stretch my wings".
My "breathing rehab" has been over the 8 weeks here a really "static" affair with no articulated goals, parameters to achieve the next step etc - any SMALL changes in machine settings or routines that have occurred have happened after long and bitter complaining by me with Dr. Gupta FINALLY saying "yes, we can do that...."
My Pulmonologist from before I ended up here had figured a week, or two MAX to wean me off onto ROOM AIR during the day. DID I say it has been EIGHT WEEKS???????
I wish I had kept a much more detailed personal journal about my ventilator rehab...
oh, and that ****ING Chinese oximeter's PC based report software? Which is supposed to analyze the overnight data taken and stored by the unit? It printed out a report that had the lead respiratory tech just about soiling her shorts, reporting an average of SAO2 of 40%... an unsupportable number BECAUSE, a detailed examination of the data set would show NO SAO2 NUMBERS UNDER 75!!!!
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You should have a case manager from either your insurance or the state Medicaid office either of which is paying for this stay. They are intimately involved with trying to get you out ASAP when you meet goals. The nurse manager and case manager in conjunction with the Attending physician should have been monitoring all of this and working towards your stated goals, otherwise how the F**K does anybody know if you're progressing or not.
Request a case conference with the above (and an advocate for you, like your physician, a patient advocate, or patient omsbudman) so that all the goals and data are on the table. Even though you are in a rehab facility, care and decision making should not have to wait for the only 2 days the doctor is there. People get moved and discharged all the time. Also, discharge planning, including all outpatient needs like portable oxygen, nursing care or monitoring, oximeters, lab test schedules, transportation, etc. should all be requested and managed by the case manager and the facility. Your insurance/medicaid should be coordinating this unless they like spending more money than needed (not usually likely).
As for the doctor, IME, the answer to your question about him is "all of the above". Kick some asses so they get into gear to work for you and your needs/desires consistent with the factual medical data and progress you have been making. With the case manager, set a firm goal/date that you believe you are capable of making, and then tell them to get all relevant date together to answer all necessary questions about your health situation.
Usually the insurance is pushing all the time, you've just got to get their attention again where it really matters for them ($$$$). You may even have to get their utilization or medical director involved if you think you're being sandbagged. Usually, the quicker a motivated patient gets home, the better the outcome, IME.
Hang in there Mark and don't take no for an answer. But true, signing out AMA will toss all your insurance options into the dumpster.
Hard to believe there can be such a level of incompetence in the medical profession. You'd think they would be held to a higher standard since they are dealing with people's lives, but sometimes it seems like the same mentality that you'd expect to find working at the Wallmart.
Hang in there, Mark. Sounds like it's all in the paperwork at this point and hopefully things will move along quickly once they start rolling again.
Hang in there, Mark. Sounds like it's all in the paperwork at this point and hopefully things will move along quickly once they start rolling again.
Monday "morning" addendum, under the title of adding insult to injury:
I had a conversation with my on-duty respiratory therapist as she reconnected my collar breathing stuff, disconnecting the vent I (am forced to) sleep on...
The head respiratory therapist, the person I expected to be my best "in my corner" advocate... is on VACATION, with NO warning AT ALL that she would not be in this week.
:gigglemad
That means there is nobody at all working on getting me out to a sleep study, especially this week.
Ya know, guys who know how to FIX things, are in a REALLY good position when they intend to REALLY *&%$ something up...... bad mark......
the one bright spot, woke up doubled over in agony from something wrong with my foley catheter, (and when on the vent, with the trach cuff inflated, I CANNOT talk!!) and my on-duty nurse Marc was quite fast in alleviating the pain, instantly judged the current one unsalvagable as placed and got a new one in that has so far today remained blessedly trouble free, MORE trouble free than ANY of the previous ones!!! kudo's to him...
I had a conversation with my on-duty respiratory therapist as she reconnected my collar breathing stuff, disconnecting the vent I (am forced to) sleep on...
The head respiratory therapist, the person I expected to be my best "in my corner" advocate... is on VACATION, with NO warning AT ALL that she would not be in this week.
:gigglemad
That means there is nobody at all working on getting me out to a sleep study, especially this week.
Ya know, guys who know how to FIX things, are in a REALLY good position when they intend to REALLY *&%$ something up...... bad mark......
the one bright spot, woke up doubled over in agony from something wrong with my foley catheter, (and when on the vent, with the trach cuff inflated, I CANNOT talk!!) and my on-duty nurse Marc was quite fast in alleviating the pain, instantly judged the current one unsalvagable as placed and got a new one in that has so far today remained blessedly trouble free, MORE trouble free than ANY of the previous ones!!! kudo's to him...
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