markthefixer Needs Your Support!
- Thread starter Robie
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I just did "step 1".... got into my wheelchair, disconnected from the O2 and rolled downstairs to the administrators office. Long conversation ensued, and she was familiar enough with me and my case to ask a few salient questions. If that's good OR BAD I don't know...
She was told I have no confidence in Dr. Gupta, and that he did not seem to be contributing to my recovery. That I was sure I am physically recovered enough to go home and resume normal "ADL", on oxygen, either to restart my stalled respiratory recovery OR start my permanent need for supplemental oxygen. Seemed properly angered that instead of a resolution before Dr. Gupta went on vacation, Dr. Gupta left things completely hanging in the air for two weeks, leaving only ONE week to do ANYTHING and everything needed to prepare for my discharge, prep my home with medical equipment, etc....
Asked about second opinions too. Changing doctors, etc....
Warned that relying on the studies generated by that Chinese Oximeter to determine my ongoing care (done on unqualified software by unqualified personnel) was not acceptable and that would be item one in any legal review of the case.
Time will tell if steps two through ??? are needed.
She was told I have no confidence in Dr. Gupta, and that he did not seem to be contributing to my recovery. That I was sure I am physically recovered enough to go home and resume normal "ADL", on oxygen, either to restart my stalled respiratory recovery OR start my permanent need for supplemental oxygen. Seemed properly angered that instead of a resolution before Dr. Gupta went on vacation, Dr. Gupta left things completely hanging in the air for two weeks, leaving only ONE week to do ANYTHING and everything needed to prepare for my discharge, prep my home with medical equipment, etc....
Asked about second opinions too. Changing doctors, etc....
Warned that relying on the studies generated by that Chinese Oximeter to determine my ongoing care (done on unqualified software by unqualified personnel) was not acceptable and that would be item one in any legal review of the case.
Time will tell if steps two through ??? are needed.
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Uh oh, this does not bode well....
HOW would a Doctor minimize back talk from a patient?
Wake the patient up from a deep sleep at 6:30 in the morning.
Make SURE said patient is on a vent, which means his trach collar is inflated and he is MUTE. UNABLE TO TALK.
As a side benefit, the woken patient usually is badly distracted by a trach breathing tube that suddenly is occluded by his wakening increase in airflow.
THEN start mouthing platitudes about having to STAY on the vent, which brings up the specter of 24 hours continuously on a vent.... which is for me a STRONG motive for Murder.
Choking, heart pounding about 90 etc....
There is a patient downstairs that swears that if he wins the lottery he will buy the place and burn it down.... I now sympathize.
I'm waiting to see what orders that substitute milquetoast wrote.
HOW would a Doctor minimize back talk from a patient?
Wake the patient up from a deep sleep at 6:30 in the morning.
Make SURE said patient is on a vent, which means his trach collar is inflated and he is MUTE. UNABLE TO TALK.
As a side benefit, the woken patient usually is badly distracted by a trach breathing tube that suddenly is occluded by his wakening increase in airflow.
THEN start mouthing platitudes about having to STAY on the vent, which brings up the specter of 24 hours continuously on a vent.... which is for me a STRONG motive for Murder.
Choking, heart pounding about 90 etc....
There is a patient downstairs that swears that if he wins the lottery he will buy the place and burn it down.... I now sympathize.
I'm waiting to see what orders that substitute milquetoast wrote.
Here is an interesting video that documents clearly the inaccuracy displayed by certain cheap finger pulse oximeters.
http://www.youtube.com/watch?v=h1qwmq7Er60
"At the 1:00 minute mark you will start to see that the cheap Chinese oximeters did not pick up the oxygen level dropping (desaturation) and recovering. This is extremely dangerous for many oximeter users. If an oximeter is providing false reading this can lead to the user/patient making decisions that can potentially cause serious harm."
This link is for the State of Illinois Long Term care Ombudsman program - unfortunately, they appear to focus on >60...
http://www.state.il.us/aging/1abuselegal/ombuds.htm
My very best wishes to you for your recovery, Mark. Your determination is inspiring!
http://www.youtube.com/watch?v=h1qwmq7Er60
"At the 1:00 minute mark you will start to see that the cheap Chinese oximeters did not pick up the oxygen level dropping (desaturation) and recovering. This is extremely dangerous for many oximeter users. If an oximeter is providing false reading this can lead to the user/patient making decisions that can potentially cause serious harm."
This link is for the State of Illinois Long Term care Ombudsman program - unfortunately, they appear to focus on >60...
http://www.state.il.us/aging/1abuselegal/ombuds.htm
My very best wishes to you for your recovery, Mark. Your determination is inspiring!
I haven't seen the orders, but I have been informed that I have been scheduled for a sleep study on Monday, July 2nd.
something may finally be happening.
something may finally be happening.
sorry to hear you're not well.........here's wishing you a speedy recovery..
AnalogDigit
Realistic fan.
Hope you do well on the sleep study. Sorry that there treating you bad at the hospital. hope things get better for you.
Sleep study accomplished and I am back. The place is less than 1/2 mile from "here".
Just a baseline study, no masks or whatever.
Lots of wires, and stuff including a tiny sensor assembly that perched in my mustache and monitored both nostrils and my mouth. No masks etc....
We'll see what happens next....
edit: I also took along that recording oximeter and used it, so I have my own record of oxygenation that night. I'm starting to think I can fall asleep in the middle of a rock concert, I doubt I was awake more than 10 minutes after my head hit the pillow, and while I woke briefly twice in the night, the tech waking me up at 5:30 am announcing my ride back had arrived seemed all too soon. All the wires and instrumentation, strange bed, strange posture, clothes on and everything seemed to make no difference.
Just a baseline study, no masks or whatever.
Lots of wires, and stuff including a tiny sensor assembly that perched in my mustache and monitored both nostrils and my mouth. No masks etc....
We'll see what happens next....
edit: I also took along that recording oximeter and used it, so I have my own record of oxygenation that night. I'm starting to think I can fall asleep in the middle of a rock concert, I doubt I was awake more than 10 minutes after my head hit the pillow, and while I woke briefly twice in the night, the tech waking me up at 5:30 am announcing my ride back had arrived seemed all too soon. All the wires and instrumentation, strange bed, strange posture, clothes on and everything seemed to make no difference.
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ukfan4sure!
Expert Smoke Releaser
Mark;
I've had this done. The wires from hell. They kept me from sleeping hardly any, but they did manage to get a couple of hours out of me. The sensor in your nose was for O2 level/breathing patterns. They determined that I had over 70 "episodes" an hour and my blood O2 level had fallen significantly during this time. You will meet with a Dr. next who can advise you of the process and your estimated needs. Next you will be guided through the process of fitting a mask and a pressure level for your needs. This means another "study" and adjustments to suit your comfort and suitability.
Now I'm assuming you'll need all of this, but you may not. They may say lose 15 lbs. and you'll be fine.
aussiedan
Ambition beyond ability
Well Mark, I hope your feeling better. You sound like you are feeling good enough to put up a good argument.
Maybe you could remind Dr gupta that your medicare has already helped pay for his holiday (and possibly his flash car), that you have done your penance and it might be time to just "let you go".
The staff won't help, they have to put up with him long after you are out of there.
All the best mate.
Maybe you could remind Dr gupta that your medicare has already helped pay for his holiday (and possibly his flash car), that you have done your penance and it might be time to just "let you go".
The staff won't help, they have to put up with him long after you are out of there.
All the best mate.
As far as Gupta and keeping me here - here's how it currently sorts out:
Gupta will be back this coming Monday, and they stop getting paid for me sometime during the following weekend , so by the 15 of July or sooner I am outta here.
with the time left whatever breathing equipment I need has to be delivered and installed at (a currently uninhabited) home, and I have to be "trained" on it's use.
as it is, the next three days are forecast to be 100 degree days, somewhat unusual for this area, so i am not exactly chomping at the bit to experience it at home on my first days out.
My dad and my brother conspired this weekend to install the 5k btu unit in my bedroom window, (when I was last in the house it was the middle of February) thus I then close the door and sleep in a 72 to 74 degree room at night. It pulls 5 amps IIRC and I have another MUCH older 5k btu unit that is unused that pulls 10 amps for the same cooling.
There is a 20+ year old whole house AC unit coupled onto an 80 percent efficient gas furnace in the basement. It ALWAYS seemed to need recharging every year although the leak was never found (with some D*** dedicated searching no less!!) so way back we / I got a cylinder of R22.
The last time I tried to charge it, the pressure was so low that the compressor was locked out, so I used a bucket of hot water as a boost to get gas in and pressure up. The compressor kicked in when I was away for a few minutes and when I came back, it had sucked in an overcharge and the high side pressure was scary high...
I take the fifth on what happened next.
I u$$ed it that season and maybe a second until a hit on an electrical line welded the contactors closed, thus having to shut down the breaker to shut it off. My records show late in 2007 I got a replacement contactor and eventually I got my electrician neighbor to get down where I couldn't and replace the contactor.
I haven't run it since, so that's about 4 to 5 years, it definitely will need a recharge.
On the really hot ( > 85 degrees) days I flush the house air in the coolest of the early morning and button it back up. Between fans for moving the air and the 5k unit in the bedroom I can keep it to about 85 degrees or less.
below 85 degrees I go with outside air and fans (and skin -
) if it is not humid, and run a dehumidifier with the house closed up if it is humid, (and skin in the fan breeze again - )Basically the whole house unit was super inefficient and super expensive (for my budget) to run.
The basement doesn't have a bathroom, or I would move into it during the summer, and stick the 5k unit in one of the casement windows, an ideal spot iiac.... (hot air rises to AC etc..)
I can't imagine the hot humid weather is good for your breathing.
Sounds like you need a heat pump, maybe have someone rip out the old AC if it isn't working right, is too expensive to run, and is just sitting there. May as well recycle it all, then plan on something more effective. Heck, I wonder if you could get your physician to indicate that medically it is needed in order for you to live at home.
As for living in the basement, may be more comfortable, but ingress and egress, especially in some emergency situation, should be a high priority issue. Do you have a direct in and out route to the surface? Due to your weight, could emergency personnel lift you out?
Sounds like you need a heat pump, maybe have someone rip out the old AC if it isn't working right, is too expensive to run, and is just sitting there. May as well recycle it all, then plan on something more effective. Heck, I wonder if you could get your physician to indicate that medically it is needed in order for you to live at home.
As for living in the basement, may be more comfortable, but ingress and egress, especially in some emergency situation, should be a high priority issue. Do you have a direct in and out route to the surface? Due to your weight, could emergency personnel lift you out?
Also, might better consider a stand alone unit with venting to nearest window, that way, the unit is portable within the home and can be set up to blow closer to where its needed.
Important though to consider that things must be kept quite clean if there is any use of a ventilator, C-pap, or tracheostomy. Don't want another respiratory infection to complicate matters.
http://www.costco.com/Browse/Produc...nav=&cat=30995&hierPath=103*30995*&lang=en-US
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