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Important though to consider that things must be kept quite clean if there is any use of a ventilator, C-pap, or tracheostomy. Don't want another respiratory infection to complicate matters.

mech986 - I have been living with this trach for the last eight years, I have taught (or reminded) my various respiratory techs things....

NO respiratory infections during that time, and even far fewer sinus infections.


OH, it's going to take a week for sleep study results, too....

think that through and you'll see why that also infuriates me... :D
 
mech986 - I have been living with this trach for the last eight years, I have taught (or reminded) my various respiratory techs things....

NO respiratory infections during that time, and even far fewer sinus infections.


OH, it's going to take a week for sleep study results, too....

think that through and you'll see why that also infuriates me... :D

Sorry, did not know your prior hx with the trach. Obviously, you've done well managing it. Week for the sleep study, of course, especially when they take two days off during the week for the holiday (course, that's when they schedule it).
 
OH, it's going to take a week for sleep study results, too....

think that through and you'll see why that also infuriates me... :D

Light at the end of the tunnel Mark??


90 day limit? is the 15 th (or somewhere in there)

even if the doctor would have ordered the sleep study as soon as he got back, and he got me in immediately, he still would not have had the information back in time to act upon it.

my latest little sneaking bastard voice fear is that he will try to keep me past 90 days, by converting me to a permanent "resident".
 
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Hopefully when you get out of the hospital, this tropical heat wave will pass and you won't need an air conditioning unit for now. The last time it was this hot in this area was 1988. But I fear that this year might top that.
 
Mark,
Just remembered my Mother just had a Hospital visit and the Doctors set up a visiting nurse with a group of remote devices to monitor her at home. The devices checked O2 weight blood pressure all via phone. The came by as needed during the week.
Maybe there is something like this in your state to look into.


Barney
 
Gupta did it to me again!!! Last night was supposed to be a test that would determine how I would be discharged, with the orders being cut TODAY, either with a "trach collar" to sleep, or on a "vent" (respirator) to sleep.

The discharge orders were supposed to be written and "phoned in" TONIGHT, depending upon the results of last night's test, as reported this morning.

Instead of discharge orders tonight as promised, he wants ANOTHER (a repeat) test tonight (the test last night had very clear results, ones that did not favor his saddling me with a vent) and he isn't even man enough to face me when he screws me over, he had the head respiratory tech tell me.

then SUPPOSEDLY on Saturday, after learning the results of the additional test, he will write and phone in the discharge orders. yeah, right...

remember that "sleep study" the week before last (nite of july 2)? the results are STILL not in!!! Further evidence of Gupta's intentions, since he would know how long it takes to get results. Every f%$#ing word out of his mouth is a half truth or evasion, if not an outright lie.

I'm not looking for sympathy, encouragement or advice, this is just posted to keep everybody up to date.

I have DEMENDED DISCHARGE,
I have DEMANDED A TRANSFER,
I have served notice that I will not pay ANY additional charges beyond a certain named dollar amount, and that they were cut off just as surely as an Insurance Company refusing to pay any more.

Guess where all of that has got me?

Right.....this Monday night is the 90th night, 91 is a magic and expensive number....

edit: I am told that Thursday's (yesterday) afternoon encounter with Gupta (that resulted in "one more test" last night) was clearly heard from one end to the other of the entire 200 foot second floor hallway. EVERYBODY heard my demands. :gigglemad

I think as a fruitless effort to control me and keep me cooped up in the room, that they do not provide me (NOT DENY, again it "just doesn't happen" while they smile and say "sure") with the requested "traveling oxygen" THAT MANY OTHERS HAVE, I would have to control a 34 gallon garbage can sized rolling tank along with my wheelchair. Not easy. elevator too? fuhgeddaboutit....
So, instead I shuck the oxygen, breathe hard and go walkabout, popping up in various offices unexpectedly. <evil smile>
 
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wish i could help help in some way . i can usually get things sorted over here by getting a report sent to the press . bit like name and shame but with a good report for them when a positive result transpires .. maybe very touchy ground over there with the way your laws are set out .
anyway it sounds like you are on the mend and will be home soon
all the best ..
 
Now if you had a wife.........She could bne doggin Gupta like an ol' blue tick hound. It seems an advocate would be nice.
 
I assume you would need a bit of home and after care. I wish this wasn't the case, or I would say...sign out AMA and go straight to the nearest news station and expose Gupta for the pompous uncaring prick that he is.
 
Mark you have my sympathies I had a heart bypass in Aug 2006 A 12 hour oporation . Dr didn't think I was going to make it 24 hours they even had a heart pump plugged into me after the surgery for about a week
Had to stay 30 days prognosis was not good was on ventilator for 3 wks They even sent a Priest to came by to see me asked about religious affiliations requests etc. this was after I was off the ventilator. After all that Dr.'s told me I was still probably going to need a heart lung transplant and asked if they could put me on a list. $987.000.00 in bills no medicare just blue cross. They were going to send me to a nursing facility. I had to press them to get discharged But they sent me home to family instead I did need after home care and nursing visits none now like Steelman says . I`m still around in spite of them. Unfortunatley I was not able to return to work .
but with a good lifetime disability ins , max SS benifits and upcoming pension those things are OK .
I've been following your progress on AK here because of similar experience also have read quite a bit of your technical advise on Pioneer stuff the last couple of years I have an SX980 and SX3900.
keep getting better
regards
 
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I can't imagine what frustration that you must deal with on a daily basis at that place. It is nice however to hear of your mobility even labored as it is. I have wondered how your exercise routine was being dealt with as I know how quickly atrophy sets in with inactivity of the muscle groups. I wish there was more we could do to help you with dealing with the system. Time is short it seems and prayers and angles be with you through out your journey from your present environment.
 
Gupta did it to me again!!! Last night was supposed to be a test that would determine how I would be discharged, with the orders being cut TODAY, either with a "trach collar" to sleep, or on a "vent" (respirator) to sleep.

The discharge orders were supposed to be written and "phoned in" TONIGHT, depending upon the results of last night's test, as reported this morning.

Instead of discharge orders tonight as promised, he wants ANOTHER (a repeat) test tonight (the test last night had very clear results, ones that did not favor his saddling me with a vent) and he isn't even man enough to face me when he screws me over, he had the head respiratory tech tell me.

then SUPPOSEDLY on Saturday, after learning the results of the additional test, he will write and phone in the discharge orders. yeah, right...

well I passed the second test with flying colors. The results are consistent with the previous night's test.


we'll see what that lying esso bee does next.
 
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